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HOARDING SPENT A CENTURY FILED UNDER THE WRONG DISORDER

FOR MOST OF HISTORY HOARDING HAD NO HOME IN MEDICINE

DOCTORS KNEW THE BEHAVIOR WAS REAL

THEY JUST DID NOT KNOW WHAT TO CALL IT

SO THEY FILED IT UNDER SOMETHING ELSE

FOR DECADES THAT SOMETHING ELSE WAS OCD

THE LABEL NEVER QUITE FIT THE PEOPLE IT DESCRIBED

HERE IS HOW THAT FINALLY CHANGED

THIS NEWSLETTER IS FOR INFORMATIONAL PURPOSES ONLY. NOTHING IN THIS CONTENT CONSTITUTES MEDICAL, PSYCHOLOGICAL, OR PROFESSIONAL ADVICE. ALWAYS CONSULT A QUALIFIED HEALTHCARE PROFESSIONAL BEFORE MAKING ANY HEALTH RELATED DECISIONS

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OKAY BACK FROM THE FILING CABINET 🗂️

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HIDDEN INSIDE ANOTHER DISORDER 🧩

FOR YEARS HOARDING WAS TREATED AS A SYMPTOM NOT A DISORDER

IT WAS TUCKED INSIDE OBSESSIVE COMPULSIVE DISORDER

ON PAPER HOARDING AND OCD LOOKED LIKE COUSINS

BOTH SEEMED TO INVOLVE UNWANTED THOUGHTS AND REPEATED BEHAVIOR

SO THE TEXTBOOKS GROUPED THEM TOGETHER

THE TROUBLE WAS THAT TREATMENTS FOR OCD RARELY HELPED

THE PEOPLE WHO HOARDED DID NOT MATCH THE PEOPLE WHO HAD OCD

SOMETHING ABOUT THE CATEGORY WAS SIMPLY WRONG

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THE RESEARCH THAT BROKE IT OPEN 🔬

A GROUP OF RESEARCHERS SET OUT TO TEST THE ASSUMPTION

RANDY FROST AND GAIL STEKETEE HAD STUDIED HOARDING FOR YEARS

DAVID TOLIN BROUGHT IT INTO THE BRAIN SCANNER

ONE FINDING STOOD OUT ABOVE THE REST

ONLY ABOUT 18 PERCENT OF HOARDING PATIENTS ACTUALLY MET THE CRITERIA FOR OCD

THE BRAIN SCANS TOLD THE SAME STORY

HOARDING LIT UP DIFFERENT REGIONS THAN OCD DID

THE GENETICS POINTED IN A DIFFERENT DIRECTION TOO

EVEN THE RESPONSE TO TREATMENT LOOKED NOTHING ALIKE

EVERY LINE OF EVIDENCE SAID THE SAME THING

HOARDING WAS ITS OWN CONDITION

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A DIAGNOSIS OF ITS OWN 📖

IN 2013 THE NEW EDITION OF THE DSM ARRIVED

THAT MANUAL IS THE BOOK THAT DEFINES EVERY MENTAL HEALTH DIAGNOSIS

FOR THE FIRST TIME HOARDING DISORDER WAS LISTED ON ITS OWN

IT WAS PULLED OUT FROM UNDER OCD ENTIRELY

IT WAS GIVEN ITS OWN NAME AND ITS OWN CRITERIA

THAT CHANGE WAS FAR MORE THAN PAPERWORK

A REAL DIAGNOSIS MEANS RESEARCH FUNDING AND REAL TREATMENT

IT MEANS INSURANCE CAN RECOGNIZE IT

IT MEANS THE PEOPLE LIVING IT ARE FINALLY SEEN

A CENTURY OF MISLABELING CAME TO AN END

The End

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